Sensitisation –
raising public awareness
Childhood Cancer Switzerland regularly launches awareness and prevention campaigns. These aim to raise the public’s awareness of childhood cancer and draw attention to the needs as well as challenges of those affected. The campaigns take place during the International Childhood Cancer Awareness Month, also known as ‘Golden September’.
The challenges of integration
For children and adolescents with cancer, school plays a particularly important role: it means a return to everyday life and normality. It provides support and security, is where they can meet their peers again and opens up future perspectives. This is exactly why everything should be done to ensure that young cancer patients do not lose touch with school. However, despite all the efforts, there are major cantonal and regional differences, which means that integration is still a matter of luck. The road to a school system that gives all seriously ill children equal educational opportunities is thus still long. Children affected by cancer and their parents are among those who suffer.
What does the future hold?
In Switzerland, around 350 children and adolescents are newly diagnosed with cancer every year. Their chances of survival are good nowadays, but the recovery comes at a price because the majority of what are referred to as survivors struggle with late effects. These can impact not only their health but also their career prospects. The desire to return to normality after overcoming an illness and to find suitable training and employment is great, but integration is not always successful. There are not enough targeted support measures to ensure that a growing number of childhood cancer survivors are given an equal place in our society.
When insurers won’t pay
When a child is diagnosed with cancer, it is one of the worst things that can happen to a family. The situation becomes particularly difficult for those affected if urgently needed medicines and additional therapies are not paid for by the health insurance companies or are only reimbursed after a great deal of bureaucracy. This causes an enormous additional burden and great uncertainty for the parents at a time when the survival of their child is quite naturally their main focus. The reform of the Ordinance on Health Insurance currently planned by the federal government will exacerbate the problem and further impair access to vital drugs and medication for children with cancer.